ASSEMBLY HEALTH COMMITTEE

STATEMENT TO

ASSEMBLY JOINT RESOLUTION No. 181

STATE OF NEW JERSEY

DATED:  DECEMBER 16, 2024

      The Assembly Health Committee reports favorably Assembly Joint Resolution No. 181.

This joint resolution designates May 15 of each year as “Tuberous Sclerosis Complex Awareness Day” in New Jersey. Tuberous Sclerosis is a rare genetic complex causing non-cancerous tumors, primarily in the brain, heart, kidneys, eyes, and lungs.

     The tumors and abnormal brain structures characteristic of Tuberous Sclerosis block the flow of cerebrospinal fluid to the brain, resulting in epilepsy, autism, attention deficit hyperactivity disorder, and mood complexes. Tuberous Sclerosis is a leading cause of epileptic seizures, and sixty percent of those with Tuberous Sclerosis experience autism.

     Tuberous Sclerosis affects 50,000 individuals in the United States, and there is currently no cure. Research will prioritize earlier diagnosis, therapies, and mechanisms for prevention.

      May 15 is also recognized as global Tuberous Sclerosis Complex Awareness Day to increase public awareness of this rare condition.